This question speaks to the lack of type 1 diabetes awareness that the online and offline diabetes communities are already well aware of. The more I learn about type 1 diabetes the more I begin to appreciate
Nick’s realization that sometimes you need to alter your perspective and routine to allow progress and growth (if you haven’t read his blog post “Making Peace with Vulnerability”, I highly recommend doing so). Nick talks about finding yourself in a rut and realizing that you need to make some changes in order to grow and be healthier. It’s not necessarily that what you were doing before was wrong, but that there is room for improvement. Going back to my lifeguarding example, it’s not the education that we receive is ineffective or incorrect, but that there is more that could be added to the curriculum to make us even better lifeguards and more prepared for any situation we may find ourselves in.
Similarly, it’s not that the diabetes charities are wrong (on the contrary, they are doing some very important work and are skilled at bringing the community together and rallying support), but that there is room for improvement. Donor contributions can be even more effective if they are used towards projects that align with donor intentions and fundraising messaging.
The JDCA is working to study the operations of these charities in order to identify the obstacles that stand in the way of a cure and encourage both the charities and donors to focus on projects that are working toward a Practical Cure.
The JDCA’s mission is “to direct donor contributions to the charitable organizations that most effectively fund research with the goal of delivering a type 1 Practical Cure by 2025.” I think that says it all- we believe these organizations are the best equipped to accelerate the development of a cure. Our research and analysis is intended to help show a different perspective to encourage progress and growth toward the goal of a cure.
Just like Nick’s personal experiences and my reflection on training as a lifeguard, there is always room for improvement; you just need to be open to modifying your perspective.